About Rock CF
What is Cystic Fibrosis
Cystic Fibrosis (CF) is a genetic disorder that causes the body to produce thick and sticky mucus that clogs the lungs and pancreas making it hard for patients to breathe and absorb nutrients from the food they eat. This thick mucus causes recurring lung infections, loss of lung function and eventually premature death. Life expectancy for patients with CF is 37 years old. When coupled with the proper treatments for CF, exercise and running has been show to help maintain lung function in CF patients. Please visit www.cff.org for more information about cystic fibrosis.
The Rock CF Foundation is a 501(c)3 nonprofit corporation. Founded and led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.
Diagnosed with cystic fibrosis when she was 18 months old. EmilyDoctors then told her parents she would not live long enough to graduate from high school. Her parents knew then that this would not be the case. They kept Emily active from then on while also keeping an amazingly positive attitude. Because of the tireless work of the Cystic Fibrosis Foundation, life enhancing drugs and treatments have helped her become the 30 year old runner, biker and CF spokesperson and motivator that she is today. She started running half marathon’s in 2008 and saw her lung function improve to numbers she hadn’t seen in years and realized she has never felt better. Emily is out-running cystic fibrosis and is looking your help!
Emily’s New York Times Features: